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Editors (publications) / Editeurs (publications) / Editores (publicaciones)

Libraries / Bibliothèques / Bibliotecas


SCIENTIFIC SOCIETIES / SOCIETES SCIENTIFIQUES / SOCIEDADES CIENTIFICAS


WEB SITES / SITES INTERNET / LUGARES WEB


ASSOCIATIONS OF PATIENTS / ASSOCIATIONS DE PATIENTS / ASOCIACIONES DE PACIENTES

  • Association nationale d'entraide des parents de naissances multiples - ANEPNM
    President : Mme Fabienne MEG
    Address : 26, boulevard Brune - 75014 PARIS - France
    Tel.: +33 (0) 1 40 44 44 15 / 1 45 20 18 11

  • Association Pauline et Adrien
    President : Mme Chantal RAMOGIDA
    Address : B.P 2-920 chemin du Pré Seigneur - 78670 VILLENNES SUR SEINE - France
    Tel.: +33 (0) 1 39 75 66 42 - Fax : +33 (0) 1 39 75 92 47
    Activities :
    To inform and support infertile couples.
    To inform its members on medical, legal and social aspects of infertility and of its treatments.
    To organise conferences on infertility related subjects.
    To conduct surveys.

  • Réseau DES France
    President : Mme Anne LEVADOU
    Address : 12, rue Martinon, 40 000 Mont-de-Marsan - France
    Tel./Fax : + 33 (0) 1 40 21 95 13
    Website: http://www.des-france.org/accueil/default.asp
    Activities :
    To inform and support persons concerned by problems linked to distilbene.
    To create a solidarity network.
    To participate to workshops.
    To organise meetings.
    To cooperate with DES-action groups in particular the DES-cancer groups worldwide.

  • Endometriosis Association
    President / Executive Director : M.L. BALLWEG
    Address : 8585 N. 76th Place - Milwaukee - WI 53223 - USA
    Tel.: + 1 414 355 2200 - Fax : + 1 414 355 6065

  • Turner Syndrome Society of the United States
    President : Tina M. JONES E-Mail : tjones@trib.com
    Executive Director : Lynn-Georgia TESCH E-Mail : tesch005@tc.umn.edu
    Address : 1313 SE Fifth Street, Suite 327 - Minneapolis, MN 55414 - USA
    Tel.: + 1 612 379 3607 / +1 800-365-9944 - Fax : +1 612 379 3619
    Website : http://www.turner-syndrome-us.org
    Activities :
    To increase public awareness and understanding of Turner's Syndrome;
    To increase understanding of those affected by Turner's Syndrome about the condition and its associated problems;
    To provide a forum where those affected by Turner's Syndrome can become acquainted with others in similar situations and thereby gain some understanding of how to cope with the problems created by the condition;
    To work together with medical and health-care professionals to better understand the condition through research and communication of ideas.

  • IFIPA - International Federation of Infertility Patient Associations
    President : Mrs Clare BROWN E-Mail : ClareBrown@child.org.uk
    Address : Charter House - St Leonard's Road - BEXHILL ON SEA, East Sussex TN40 1JA - United Kingdom
    Activities :
    To promote better understanding of infertility and related issues world-wide in the interest of individuals suffering from infertility and the impact on the lives of those affected;
    To create a forum for discussion of critical issues concerning infertility, and to share information on infertility;
    To assist, when requested by a member association, in the coherence and co-ordination of the actions and programs of its members in their respective countries and to provide support to its members in their activities;
    To keep its members informed on scientific, medical, psycho-social, ethical and legal developments in the field of infertility.
 
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